CTH Story of Pooja Sharma

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Relentless efforts and a strong will power have been behind Pooja's rehabilitation. She is definitely an achiever. Pooja's story in his own words I had a tumor on backbone by birth which was operated upon when I was just 40 days old. Due to the negligence of the surgeon, my nerves got damaged and hence disabled my lower body completely, making me a full time wheelchair user. I have Bifida (not sure about exact medical terminology). It has no cure in medical science so far! ". How do you manage your day to day activities...a brief description i.e. with somebody's help or you are able to cope up with routine activities yourself? I live with my mother, but then do all my work on own. I do all my chores on wheelchair. My office cab comes to pick me, I go near cab with my wheelchair, and shift inside cab. I have kept one wheelchair at office, once I reach office, the security person or my cab driver gets the wheelchair which is in reception, and I get on to it, then go to floor on my own. I rarely sit on wheelchair, only when I need to move I use it. Otherwise I would shift to normal chair. Whenever I want to go out for shopping or sight seeing, I book cab and carry personal chair. I do not take any help wherever I can manage myself. If the ramps are steep or roads are uneven I seek my friend’s help. Luckily all through my life I have had good people around me. They do not treat me differently, they feel that I am competitive in every thing. Now before I go to any place, I enquire about it, whether it is accessible. I have been to United States, Dubai. Have not faced a single issue. Those places are paradise for wheelchair users. What do you think about marriage and life partner? I don’t like the perceptions that people with disabilities (PWD’s) should marry only disabled. Does that sound right ? Is this not discriminating ourselves? I am not against marrying disabled. But I don’t like if it is set as rule. Ideal girl in my view should have individuality, strong-hearted, and should have respect for elders. Where do you see yourself after 10 years from now? May be starting my own software company or doing some business. There is no second thought on the matter that we are many times discriminated due to our challenges but if you face a situation, then how do you cope up with such feelings? Many times I felt discouraged. Even my college staff used to ask me, why I took risk of coming to college. They say even if I complete studies, I would not get any job, why I was wasting money and straining my parents, I used to get very down. Those days as Internet was not popular, I did not know if there are any people like me who are successful in life. So, I always got into depression. But then my father used to encourage me. He used to say, "Do not worry about job, just finish your studies and lets see. May be you can think of your own business like starting a Petrol bunk or a Gas Agency". My mother too used to boost my confidence, and then again I get back to normal thinking and used to get more focused in studies. I used to think only one thing, that if a normal person doesn’t get education, he will have many other options for livelihood, they can travel to any place, work at any place. But that’s not the case with me, education is very very important, as the other options which normal person have are not feasible. That fear used to haunt me, and which made me to focus more on education. My schooling didn’t go smooth, to take an example, my engineering college is 7 floor building, I have chosen that college because it had elevator, but the elevator used to work only 2 days a week and would be down because of some or other issue for rest of the days, still I used to go to college, sit on ground floor till the evening and collect notes from my friends. The reason I use to go to college even when I know elevator doesn’t work is to make parents feel happy, otherwise they would get really sad thinking even though they have put in efforts in sending me to college, still am not even able to get to the classroom. In my resume I never put my physical condition status and whenever I go for interviews I used to get rejected saying that this job may not be suitable for you or there is lot of travel involved or our work place is not accessible, and some wouldn’t even mention the reason. I waited for 2 long years to get a job in MNC, and then joined Dell International Services, Hyderabad and since then there is no looking back. What all needs to be done to make India a disabled friendly country since you have visited US and you can easily compare between the two places? India is nowhere comparable to US in providing facilities to PWD’s. They are so strict in following the laws. Every citizen knows about the ADA (American Disability Act) act, even if you ask school going kid, they will talk about this law. They take good care for even a small aspect in making places accesible. Would you believe if I say that I have not taken the help of a single person for pushing or lifting my wheelchair anywhere. Every restaurant, coffee shop, shopping places, theaters, public places have well designed ramps which would movement easy. I could just peddle myself to anywhere I want. It was such amazing experience, have not felt that I have some physical problem. Even people would not offer you help, they think its an offense to offer help unless you ask for. They treat you so nicely and equally. Here in India people give weird looks when you go out to a public place. In USA even kids are very matured, I really really liked everything about America. I found wheelchair users everywhere and every place I visited, more than what I have seen in India. There are dedicated parking places for them and nobody can dare to use them, if they are not disabled. Even here in India we have laws, but they are not followed properly, and many times the government bodies doesn’t enforce these laws strictly, they would exist only on paper. In USA, wheelchair users have many options, they can play any sport they want, everything is so easy there, you just need to think and you will be surprised to see that it is already thought of and can easily be done. The entrance to the wheelchair users is always from the main entrance only, unlike in India some places we need to go via back door or backyard or service elevators. I respect India and as it is my mother land, but people talk so big about our culture, our customs, but for me they don’t mean anything, first respecting your fellow mate is important, and treating everyone with equality is very important, which exists in US. I do not blame entirely on government, even people have to be sensitized and do their bit to build an inclusive society. And one thing to keep in mind is, the accessible places are not just meant for people who born with disabilities, but they can be leveraged by people who have met with accidents, elderly people and suffering with some or other disease. So, everyone of us will go through this phase, imagine when you are old and if someone asks you to be at home because the places are not accessible and they cannot carry you, you will be house bound watching 4 walls around you. So, we need to wipe off the thought its not my problem and start realizing it is everyone’s problem and its our duty to fix it. Have you ever felt any kind of emotional outbursts or complexes due to your physical status? If yes then how do you manage the change in your emotional reactions in different stages in your life? The only reason I get reminded of my disability is for marriage. Whenever I talk to people for marriage, I introduce myself with my disability first, and immediately the other party would end the conversation. They would not even want to know any other thing about me. Have you ever been discriminated because of your disability? Yes. My dad’s parents were against me getting educated. They thought it was waste of money and time. They discouraged me to a great extent; they many times asked my dad to utilize money spent on my education to buy assets on my name, so that I would have means of livelihood. But now no one dares to repeat the same and now they take my example and ask their children and grandchildren to follow my steps. What are your hobbies or leisure time activities? Watching romantic movies. Reading love stories. Knowing different cultures. Making friends, learning and exploring technologies. How do you react when somebody pities you? I pity them back, saying how immature they are. We can overcome physical deformities, but maturity and mental issues are really tough to overcome. Who has been your greatest motivating force in your life? My father, mother, brother & sister (younger to me). Without them I would not have been in this position.

Pooja Sharma New Delhi Education: MBA in HR from Jaypee Business School, Noida MaritalStatus: Single Disability: Spina Bifida Profession: Commercial Back End Officer at Jaypee Group Contact: contact@crossthehurdles.org Quick Fire! Favorite movie(s) Taare Zameen Pe, Page 3, Corporate. Favorite books I like Chetan Bhagat's novels, and apart from this I mostly read religious books. Favorite color Pink and Black. Craziest thing that you have ever done in your life. Yet to do. If you are marooned on an island what 5 things you would like to keep with you My wheel chair, spectacles, mobile phone, food, & TV. Favorite food North Indian Your biggest strength I never give up and that’s my biggest strength. The thing(s)that you hate I hate people who have negative attitude towards life. The first thing you do right after awaking up in the morning I thank God for the blessed life. What was your resolution on New Year I don’t believe in all such things. Don’t need New Year to bring changes to my life. The last thing you think before falling asleep in the night I thank God for everything he has given me. You prefer sons or daughters Both Oft-repeated word/sentence by you I’ll not quit until the battle is won. I keep repeating this sentence because it gives me courage and strength. If world is going to be destroyed in next 5 minutes. What would you do during this time I will completely surrender myself to God because I believe whatever he is doing is good for everyone. The best gift that somebody can offer to you I don’t expect gifts The town/country that you want to visit Europe Your bedroom take fire what would you rescue at first Depends. If I am alone then I’ll rescue myself because if I am alive then I can gather all the things again which I have lost in fire. But if I am with my family or my dear once then I will save them first.